On September 24, 2014, our youngest son was admitted to Children’s Mercy Hospital in Kansas City with inflammation along his spinal cord. He spent eight weeks in the hospital, undergoing IV steroid treatment, plasmapheresis, and in-patient occupational and physical therapy. One of 102 kids in the United States diagnosed with Acute Flaccid Myelitis, he continues to receive intensive daily therapy to help him regain his strength and, hopefully, get back to where he was before his illness. Our fingers are crossed that this plan will work.
I have remained quiet during this process mostly because I not only did not know what to expect from this sudden auto-immune attack on Billy’s system, but I also don’t really know what to write about. However, on several occasions friends have asked if I am keeping a journal or a blog to share with others who may experience the same - or similar - situation. Of course I told them, “yes”, even though the real answer is, “no”.
The time has come for me to step out on the proverbial limb and allow others inside our world as we cope with Billy’s illness and his subsequent recovery. My plan is to communicate through essays, stories, and journals about our exploits in an effort to provide a fair representation of ourselves and this illness. Thank you for allowing me the opportunity to connect with you all through my writings, and I hope you find a small fragment of faith - or even wisdom - in our story.