Not long ago I received a Facebook invite to attend a chili
cook-off in Joplin. Since I love chili and never met a cook-off I didn’t like,
I visited the event’s page to learn more about the details surrounding the
upcoming culinary competition. This particular fundraiser hopes to raise
awareness (and money, every fundraiser hopes to raise money) for the CERN (Collaborative
Ependymoma Research Network) Foundation, whose mission is to “develop new
treatments for ependymoma (a rare type of brain cancer), thereby improving the
outcomes and care of patients, ultimately leading to a cure.” But what really
caught my eye about this particular fundraiser was the fact that it is being
hosted by high school students and not, as I initially thought, by a
church or other adult-led organization.
Many of my contemporaries spend a lot of time criticizing
today’s youth. “What’s wrong with kids today?” “Why are teens so
self-absorbed?” “Why don’t kids today respect their elders and treat others
with respect?” These questions that I hear from other adults and parents are
not unlike comments made by my parents’ peers during my own coming-of-age years
(and their parents before them, and so on and so on.) Thus, when I saw that a
massive fundraiser was initiated by a couple of teenagers, I knew I needed to
delve a little deeper and find out what these kids hoped to achieve from this very worthwhile endeavor.
What motivated the event’s three main organizers – Elaina
Warren, Emily Watson, and Michael Gonzalez, all seniors at Joplin High School –
to step outside of their comfort zone and plan such an ambitious project? Their
admiration for their friend and classmate, Cooper Vocelka.
In 2008, when he was thirteen years old, Cooper began his
fight against brain cancer. After three months of vomiting and headaches from
what doctors initially thought was stress or a gastrointestinal complication,
Cooper’s mom, Sherry, requested an MRI. A scan in December revealed a 5
centimeter mass in Cooper’s brain and he was immediately sent to Children’s
Mercy Hospital in Kansas City. Six months later, Cooper successfully completed
his treatment which included two brain surgeries, chemotherapy, and 33 rounds
of Intensity-Modulated Radiation Therapy.
Cooper’s periodic scans remained clear until 2011 when a
scan in March revealed three spots on his brain. After six weeks the spots
decreased in size and in July they were deemed stable and non-indicative of a
tumor. However, in September Cooper exhibited signs of a relapse and was sent
back to Children’s Mercy for removal of a recurrent tumor. Doctors successfully
removed this latest tumor and Cooper received five rounds of Stereotactic
Radiation Therapy following the surgery, but in April of 2012 more tumor growth
was discovered. Cooper began a clinical trial chemotherapy drug in the hopes of
stabilizing the tumor. In July 2012, an MRI revealed increased tumor growth and
fluid buildup, inducing the need for yet another surgery. Unfortunately, the
doctors were unable to remove the entire tumor.
Cooper began treatment with another clinical trial drug but he experienced
adverse effects and has now been taken off of the chemotherapy.
Last summer Cooper’s youth group at the First United Methodist Church in Joplin hosted a neighborhood block party and invited all
residents in the church’s surrounding community to join them for a barbecue. When he observed the successful turnout for the block party, Cooper decided a chili
cook-off would be a great fundraiser idea for the colder winter months. He told
his friends his idea, and they immediately volunteered to help, meeting once a
week for the past few months in order to plan the event.
When asked what prompted him to choose the CERN Foundation and brain cancer research as the focus of his fundraiser, Cooper told me, “I feel one of my callings is
to be a humanitarian and activist for cancer research. Brain cancer is more
rare than other types of cancer and so they need the most research.”
While Cooper took some time off to recuperate
from his many chemotherapy treatments, his friends worked diligently to plan
the cook-off and hash out the details necessary for its success. However,
Cooper’s influence is obvious in everything about the event, particularly the
prizes: The winner of the cook-off will receive a special Chili Pot Crown and
Ladle Scepter, crowning him or her “King” or “Queen” and earning her (or him –
I suppose it’s possible a guy might make better chili than I do - but I doubt
it…) exclusive bragging rights for the best chili.
Elaina, Emily, and Michael are all eager to share their
thoughts about Cooper and the indelible mark he has made on their lives. Says
Elaina, “Cooper is always positive and never says negative things. He is always
happy for himself and others, in spite of his illness. I look up to him for
that.”
Emily adds that she is drawn to Cooper by his “perseverance
through God. He is a role model in our youth group.”
While not a member of Cooper’s youth group, Michael finds
Cooper inspiring through his attitude and actions at school and among his
peers. He also appreciates Cooper’s
willingness to use his talents to give back to his community.
As these kids told me about their plans for the fundraiser –
which they hope to turn into an annual event – I realized that despite adults’
complaints that today’s youth are “disrespectful, unmotivated, inconsiderate,
impolite, self-absorbed, lazy, etc. etc.”, many teens are actually out there
doing things to try and make the world a better place. They understand that sometimes life isn’t
fair, and that, while we don’t always know or understand why things happen the
way they do, we still have the power – and the responsibility – to do what we
can to help others around us.
Their willingness to work hard and make life
a little better for others makes me admire and respect them. As Emily said, “If the
three of us can make an impact, what else can kids our age do?”
The chili cook-off, which is open to the public, will be held on Sunday, March 10, 2013 from 12:15 to 2 p.m. in the Family Life Center at First United Methodist Church in Joplin. A $5 donation entry fee provides participants the opportunity to taste the various chili entries and vote for their favorites. The winner will be the chili that receives the most “votes” through monetary donations (so bring your check book!) The Joplin High School Jazz Band will perform and there will also be a silent auction and bake sale (donations are currently being accepted). Donations to the CERN Foundation may also be mailed to FUMC, 501 West 4th St., Joplin, MO 64801. For more information, please visit the event’s Facebook page.

Great kids, great cause, and a great youth leader who encourages and doesn't micromanage.
ReplyDeleteI agree, Dyanne. Barry's role in this event is simply to ensure the kids don't miss any important details. He is truly one of the best youth leaders I've ever met.
DeleteI find this so inspiring!!
ReplyDeleteNina, I agree. As soon as I saw that this event was being planned and run by high school students, I knew that I wanted to write about it.
Delete